It honestly makes me wonder why my symptoms went away, but yours persist…

I’ve talked to a few people (like 3 or 4 i think) with the syndrome in the past, and it behaved differently for each person I spoke to, whether it’s the symptoms, the cause, or, as in our case, whether it goes away or not.

It’s a pretty unresearched syndrome, though the Wikipedia page for it has way more info than when I last checked.

EDIT: Another thing I’m curious about is that the symptoms also stopped causing panic attacks for me. I haven’t had the eyelid thing for a while, since it’s way easier for me to do that when I’m extremely tired, but the last time that happened I didn’t get an attack at all. If anything, I tried to actually focus on what I was perceiving, I tried to make something out. Again, very weird how it develops differently for every person.

Yeah, it used to trigger panic attacks in me too. That’s fascinating!

Everything feels the wrong size. Like my hands feel tiny, or my teeth feel enormous. The bed feels like it’s the size of an ocean, or the phone I’m using to distract myself feels like a matchbook in my hands

Sounds a lot like the Alice in Wonderland syndrome.

I used to have it when I was little, and my symptoms were very similar to yours, but mine kind of went away on their own. When I close my eyes and focus, though, I can still make myself feel like the dark side of my eyelids is getting impossibly far away from me, which is very weird.

Do you still get these symptoms?